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Blog Post #4: Kids, Families & the Future: Early Screening and Prevention of Celiac Disease

Insights from the Columbia University International Symposium on Celiac Disease – June 2025. Written by Caleigh McAulay, RD, Health Promotions Manager for Celiac Canada.


In May 2025, researchers, clinicians, and advocates from around the world gathered both in-person and virtually at Columbia University’s International Symposium on Celiac Disease. The event explored the latest advancements in diagnosis, treatment, global trends, and the future of care for people living with celiac disease and related conditions.
Celiac Canada attended to bring back insights for our community.

 

In this post, we discuss how celiac disease doesn’t just affect adults — it can start in childhood, and early detection is key to preventing long-term complications. At the 2025 Columbia Symposium on Celiac Disease, researchers shared promising new findings about pediatric risk factors, screening programs, and what families can do to reduce risk. 

Early Risk Factors & Prevention

  • Gluten intake in the first 3 years may influence celiac risk. High gluten consumption early in life could increase the chance of developing the disease. 
  • Diets rich in vegetables, legumes, and fiber, and low in refined sugars, may offer some protection. 
  • Breastfeeding doesn’t prevent celiac disease, but introducing gluten between 4 and 12 months of age in moderation is recommended. 

Genetic Screening: Who's At Risk?

  • Genetic testing (HLA typing) can help identify children at higher risk, especially those with a first-degree relative with celiac or those with two copies of the HLA-DQ2 gene. 
  • Italy is leading the way with nationwide pediatric screening supported by legislation — aiming to identify and manage celiac disease earlier. 

Screening Studies & Global Efforts

      • The ASK study in the U.S. screened over 40,000 children, including those without symptoms, and found that early diagnosis improves health outcomes and quality of life. 
      • Researchers are exploring the best ages and methods for screening — including combining antibody testing with genetic risk assessments. 

What This Means for Families

  • If you have a family history of celiac disease, talk to your healthcare provider about genetic testing and screening options for your children. 
  • Introducing gluten gradually during the recommended age window may reduce risk, but always consult with your pediatrician. 
  • Stay informed about emerging screening programs and support advocacy efforts for broader access in Canada. 

"Early diagnosis and intervention can change a child's health trajectory. The more we learn, the better we can protect future generations," says Caleigh McAulay, RD.

Celiac Canada is committed to supporting families with resources, guidance, and up-to-date research to help children thrive. Visit our children’s page for more information about our Growing Up Celiac kids program!

Read our past blog posts from the Columbia University International Symposium on Celiac Disease.

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